AHC UK Virtual Family Event’s on Sat 15th May 2021
AHC UK | Virtual Family Event | Registration Link: AHC UK VIRTUAL FAMILY MEETING SAT 15TH MAY 2021 at 0930AHC UK VIRTUAL PUB QUIZ FUNDRAISER SAT 15TH MAY 2021 at…
De novo ATP1A3 variants cause polymicrogyria
Satoko Miyatake, Mitsuhiro Kato, Takuma Kumamoto, Tomonori Hirose, Eriko Koshimizu, Takaaki Matsui, Hideyuki Takeuchi, Hiroshi Doi, Keisuke Hamada, Mitsuko Nakashima, Kazunori Sasaki, Akio Yamashita, Atsushi Takata, Kohei Hamanaka, Mai Satoh,…
SAVE THE DATE: 22nd to 24th Sept 2021 (Stockholm, Sweden) for the 9th Symposium on ATP1A3 in Disease
Thank you to all at the ATP1A3 in Disease Symposium Organizing Committee for sending us this invitation via email. Please find below details and will be great if you all…
Prof. Sanjay Sisodiya giving an Overview of Alternating Hemiplegia of Childhood (AHC)
An Overview of Alternating Hemiplegia of Childhood (AHC) by Sanjay Sisodiya Professor of Neurology University College London Queen Square Institute of Neurology and Medical Advisor of Alternating Hemiplegia of Childhood…
Our journey & getting the AHC diagnosis
Every AHC family I’ve spoken to has a diagnosis story, and I thought I’d share ours with you. We got Ruby and Sophia’s diagnosis in July 2019, when they were…
A personal journey of an AHC family: An Introduction
Hi, I’m Lyndsey, and this is my blog about my family’s life with AHC! I thought I’d use this first post to introduce myself, so here goes. I’m a teacher…
Alternating Hemiplegia of Childhood (AHC) Published in the Rare Revolution Magazine
The Autumn 2020 edition of the Rare Revolution Magazine was entirely dedicated to rare and complex epilepsies of which Alternating Hemiplegia of Childhood was highlighted. The article was written by…
Emergency Care Aid for Alternating Hemiplegia of Childhood Patients
A REFERENCE GUIDE FOR MEDICAL PROFESSIONALS We would like to thank our sister AHC Charity organisation (AHCF) in the United States for this attached document for parents and medical professionals.…