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AHC UK Newsletter 28th February 2021
International Rare Diseases Day Dear AHC families, researchers and supporters, Today, Sunday 28th February 2021, is International Rare Diseases Day Rare Diseases Day is where the international community come together…
Prof. Sanjay Sisodiya giving an Overview of Alternating Hemiplegia of Childhood (AHC)
An Overview of Alternating Hemiplegia of Childhood (AHC) by Sanjay Sisodiya Professor of Neurology University College London Queen Square Institute of Neurology and Medical Advisor of Alternating Hemiplegia of Childhood…
GDPR for Websites
As you know, at the end of 2020, we succeeded in registering Alternating Hemiplegia of Childhood (AHC) UK as a Charity. This is a great achievement and we would like…
RHOBTB2 mutations expand the phenotypic spectrum of alternating hemiplegia of childhood
Sara Zagaglia, Dora Steel, S Krithika, Laura Hernandez-Hernandez, Helena Martins Custodio, Kathleen M Gorman, Aikaterini Vezyroglou, View ORCID Profile Rikke S Møller, Mary D King FRCPCH, Trine Bjørg Hammer, View…
Our journey & getting the AHC diagnosis
Every AHC family I’ve spoken to has a diagnosis story, and I thought I’d share ours with you. We got Ruby and Sophia’s diagnosis in July 2019, when they were…
A personal journey of an AHC family: An Introduction
Hi, I’m Lyndsey, and this is my blog about my family’s life with AHC! I thought I’d use this first post to introduce myself, so here goes. I’m a teacher…
Raise your One Finger for AHC #OneinaMillion #AHCAwarenessWeek
Great response we have got on the second day of the #AHCAwarenessWeek We asked people to show their support to all the AHC Champions but taking a picture of your…
AHC UK Research Newsletter Jan 21
The highlights on this newsletter series looks at: Q & A session with Dr. Katerina Vezyroglou on the ‘AHC and ATP1A3 Natural History Study’ (YouTube Link) Highlighting to register to…
New Year Wishes
Attaching New Year wishes sent out via our AHC Newsletter on the 5th of January 2021.
AHC UK Research Newsletter & International AHC Day 18th January 2021
AHC UK Research Newsletter 18th January 2021