Our journey & getting the AHC diagnosis
Every AHC family I’ve spoken to has a diagnosis story, and I thought I’d share ours with you. We got Ruby and Sophia’s diagnosis in July 2019, when they were…
A personal journey of an AHC family: An Introduction
Hi, I’m Lyndsey, and this is my blog about my family’s life with AHC! I thought I’d use this first post to introduce myself, so here goes. I’m a teacher…
Raise your One Finger for AHC #OneinaMillion #AHCAwarenessWeek
Great response we have got on the second day of the #AHCAwarenessWeek We asked people to show their support to all the AHC Champions but taking a picture of your…
New Year Wishes
Attaching New Year wishes sent out via our AHC Newsletter on the 5th of January 2021.
AHC UK Research Newsletter & International AHC Day 18th January 2021
AHC UK Research Newsletter 18th January 2021
AHC Clinical Research in the UK
We would love to hear from you! The AHC and ATP1A3 Natural History Study Alternating Hemiplegia of Childhood (AHC) is an ultra-rare disease with an estimated one in a million…
‘AHC and ATP1A3 Natural History Study’ Q&A session with Dr. Katerina Vezyroglou
Thank you to everyone who joined in this helpful Question & Answer session in November of last year with Dr. Katerina Vezyroglou on her research work. As promised, we have…
Alternating Hemiplegia of Childhood (AHC) Published in the Rare Revolution Magazine
The Autumn 2020 edition of the Rare Revolution Magazine was entirely dedicated to rare and complex epilepsies of which Alternating Hemiplegia of Childhood was highlighted. The article was written by…
Emergency Care Aid for Alternating Hemiplegia of Childhood Patients
A REFERENCE GUIDE FOR MEDICAL PROFESSIONALS We would like to thank our sister AHC Charity organisation (AHCF) in the United States for this attached document for parents and medical professionals.…
Nov 2020 Research Newsletter
Hello Friends Attaching our November 2020 Research Newsletter – Our AHC researchers continue to work across the world to try and make progress in understanding this complex condition. There are…