Newsletter January 2022
Dear AHC families, researchers and supporters, As we come to the end of the first week of 2022, we hope you and your family have had a good Christmas and…
Alternating Hemiplegia of Childhood - UK
Registered UK Charity No: 1192701
Dear AHC families, researchers and supporters, As we come to the end of the first week of 2022, we hope you and your family have had a good Christmas and…
Are you passionate about improving life for those living with AHC? Would you like to be part of a growing charity which has this aim at its heart? The AHC…
Welcome everyone to our April newsletter edition. In this, we discuss giving you an announcement about SAVE THE DATE and we look forward to seeing you all virtually. Many thanks…
Erin L Heinzen, Alexis Arzimanoglou, Allison Brashear, Steven J Clapcote, Fiorella Gurrieri, David B Goldstein, Sigurður H Jóhannesson, Mohamad A Mikati, Brian Neville, Sophie Nicole, Laurie J Ozelius, Hanne Poulsen,…
This is a guest post sent by Rachel who is mummy to little Samuel and is keeping everyone informed (The first post) of the amazing marathon Samuel is undergoing and…
Attaching below is the PDF version of AHC UK’s Newsletter 5th March 2021. The newsletter talks about thanks to everyone who contributed to International Rare Disease Day (28th of Feb’…
Principles of the UK Rare Diseases Framework “All 4 UK nations have signed up to the UK Rare Diseases Framework and have therefore agreed to collaborate to achieve the outcomes…
This is a guest post sent by Rachel who is mummy to little Samuel and is keeping everyone informed of the amazing marathon Samuel is undergoing and all the fundraising…
Today is International Rare Disease Day 2021 Why don’t you enjoy today with a ‘Rare Treat’. Can you donate the cost of Coffee & Cake for all the AHC Rare…
International Rare Diseases Day Dear AHC families, researchers and supporters, Today, Sunday 28th February 2021, is International Rare Diseases Day Rare Diseases Day is where the international community come together…
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