Tag: AHC Research

Do you want to connect with the international AHC and ATP1A3 community? Are you interested in learning more about current research and future plans in AHC and ATP1A3? Would you…

The news of the publication of the leaflet and patient journey for AHC has been included in the newsletter of EpiCARE-ERN, the European Reference Network for Rare and Complex Epilepsies.…

Dear AHC families, researchers and supporters, As we come to the end of the first week of 2022, we hope you and your family have had a good Christmas and…

For the past 7 months, I have been one of the estimated 2 million people in the UK with Long Covid. It has prevented me from doing most of the…

EDITORIAL | ARTICLES IN PRESS Revision of the Diagnostic Criteria of Alternating Hemiplegia of Childhood Mohamad A. Mikati, Eleni Panagiotakaki, Alexis Arzimanoglou Published: May 03, 2021 DOI: https://doi.org/10.1016/j.ejpn.2021.05.004 Article Info:…

Satoko Miyatake, Mitsuhiro Kato, Takuma Kumamoto, Tomonori Hirose, Eriko Koshimizu, Takaaki Matsui, Hideyuki Takeuchi, Hiroshi Doi, Keisuke Hamada, Mitsuko Nakashima, Kazunori Sasaki, Akio Yamashita, Atsushi Takata, Kohei Hamanaka, Mai Satoh,…

Erin L Heinzen, Alexis Arzimanoglou, Allison Brashear, Steven J Clapcote, Fiorella Gurrieri, David B Goldstein, Sigurður H Jóhannesson, Mohamad A Mikati, Brian Neville, Sophie Nicole, Laurie J Ozelius, Hanne Poulsen,…

This is a guest post sent by Rachel who is mummy to little Samuel and is keeping everyone informed (The first post) of the amazing marathon Samuel is undergoing and all the…

Attaching below is the PDF version of AHC UK’s Newsletter 5th March 2021. The newsletter talks about thanks to everyone who contributed to International Rare Disease Day (28th of Feb’…

Thank you to all at the ATP1A3 in Disease Symposium Organizing Committee for sending us this invitation via email. Please find below details and will be great if you all…