Tag: AHC UK

Satoko Miyatake, Mitsuhiro Kato, Takuma Kumamoto, Tomonori Hirose, Eriko Koshimizu, Takaaki Matsui, Hideyuki Takeuchi, Hiroshi Doi, Keisuke Hamada, Mitsuko Nakashima, Kazunori Sasaki, Akio Yamashita, Atsushi Takata, Kohei Hamanaka, Mai Satoh,…

Erin L Heinzen, Alexis Arzimanoglou, Allison Brashear, Steven J Clapcote, Fiorella Gurrieri, David B Goldstein, Sigurður H Jóhannesson, Mohamad A Mikati, Brian Neville, Sophie Nicole, Laurie J Ozelius, Hanne Poulsen,…

This is a guest post sent by Rachel who is mummy to little Samuel and is keeping everyone informed (The first post) of the amazing marathon Samuel is undergoing and all the…

Attaching below is the PDF version of AHC UK’s Newsletter 5th March 2021. The newsletter talks about thanks to everyone who contributed to International Rare Disease Day (28th of Feb’…

Thank you to all at the ATP1A3 in Disease Symposium Organizing Committee for sending us this invitation via email. Please find below details and will be great if you all…

Principles of the UK Rare Diseases Framework “All 4 UK nations have signed up to the UK Rare Diseases Framework and have therefore agreed to collaborate to achieve the outcomes…

This is a guest post sent by Rachel who is mummy to little Samuel and is keeping everyone informed of the amazing marathon Samuel is undergoing and all the fundraising…

Today is International Rare Disease Day 2021 Why don’t you enjoy today with a ‘Rare Treat’. Can you donate the cost of Coffee & Cake for all the AHC Rare…

International Rare Diseases Day Dear AHC families, researchers and supporters, Today, Sunday 28th February 2021, is International Rare Diseases Day Rare Diseases Day is where the international community come together…

An Overview of Alternating Hemiplegia of Childhood (AHC) by Sanjay Sisodiya Professor of Neurology University College London Queen Square Institute of Neurology and Medical Advisor of Alternating Hemiplegia of Childhood…